Do you want to lead your community and help others become more educated about Chiari malformation, syringomyelia and related disorders? Well, there are a lot of different ways to get involved with CSF and become an Awareness Leader!
When you spread awareness and invite others who have never heard of these conditions to become more engaged in the process, people who may have never heard of Chiari malformation, syringomyelia or any of the related disorders are able get more excited about helping! In many cases, those people become just as energized about the cause as the Awareness Leaders, themselves!
Learn about some of the ways you can get involved:
Join the Young Adult Ambassadors (YAAS)
Wondering if there was a way to get more education and awareness spread without your local school campus, or even your local community? YAAS! Ahem, sorry: YES! There is! Join the CSF Young Adult Ambassadors (YAAS) group to share fundraiser ideas, educational campaign concepts and more to get started on making a difference! Want to become a YAAS? Contact Cathy Poznik by email or by phone at (330) 998-6195.
(Coming Soon) Join the Student Age Ambassadors (SAAS)
We're working on a similar program to the YAAS for kids below the age of 18! More on the way! Keep checking back!
Become a CSF Chapter Rep
CSF Chapter Reps help establish local CSF Chapters all around the country! Learn more about what it takes to be a CSF Chapter Rep by contacting Cathy Poznik, our CSF Chapter Coordinator! Chapter Reps help organize awareness events, set up local fundraisers, and can even go above and beyond to help make a difference, depending on their level of involvement.
Some Chapter Reps just organize support groups among friends and find new people to get involved with CSF, while others have done so much as to work on securing a $25,000 grant for the organization! The volunteer leader can do as much or as little as he or she is capable!
Become a CSF unite@night Chairperson
This is definitely the easiest way to make a huge impact and get involved with CSF right away! CSF hosts unite@night walks every summer, usually in June. Although the unite@night walks are still only a few years old, some have grown from small gatherings of a few dedicated volunteers into large events filled with at least 100 people!
The reason for such a spike in the participation in unite@night is a direct effect of the tireless efforts of the unite@night Chairpersons. These men and women, many with large families, full time jobs and countless other projects, take valuable time out of their busy schedules in order to plan walks, recruit walkers and donors, and physically run the event. Even more amazingly, many of these men and women suffer or have a child who suffers from these conditions-- we're always in awe of what they accomplish despite so many obstacles!
After attending these walks, people who may have never heard of Chiari malformation, syringomyelia or any of the related disorders are able to attend these events and play an active role in spreading awareness. In many cases, these people become just as energized towards the cause as the Chairpersons, themselves. We at CSF truly appreciate all the Chairpersons and volunteers do in order to make unite@night one of our most special events we have the honor of sponsoring.
Check out the 2015 unite@night Chairpersons below!
Chanta Marie A. Lynette A. Shania B. Matt B. Krystal B. Traci B. Elizabeth B. Tricia B. Shirley C. Diedra C. Linda C. Kim D. Scott D. April D. Kaitlyn E. Pam F. John F. Angela F. Heather F.
Cassandra G. Angela G. Jessica G. Crystal G. Misti H. Ilyse H. Melissa H. Amanda H. Bridget H. Julie H. Melissa H. Valerie H. Shelley H. Celina H. Tancey H. Lori H. Martha H. Abigail H. Amy I.
Tonya J. Megan J. Mary Jo J. Debra K. Kaci K. Katie K. Amanda M. Meg M. Kristina M. Lisa M. Carrie M. Nancy N. Danielle N. Donna N. Traci O. Diana P. Sherie P. Dawn P.
Michelle P. Jamie R. Jennifer R. Amber R. Joyellen S. Sabrina S. Christy S. Robin S. Shannon S. Amber W. Mary Beth W. Sheila Z.