What we collect
We may collect the following information:
Name and job title
Contact information including mailing and e-mail address
Demographic information such as postcode, preferences and interests
What we do with the information we gather
We require this information to understand your needs and provide you with better service, in particular for the following reasons:
Internal record keeping.
We may periodically send emails containing information that we think you may find interesting using the email address, which you have provided.
From time to time, we may also use your information to contact you by email, phone, fax or mail. We may use the information you provide to us at those times to customize the website according to your interests.
Controlling your personal information
CSF respects your utmost privacy and will never sell, distribute or lease your personal information to third parties unless we have your permission or are required by law to do so.
If you believe that any information is incorrect or incomplete, please write to or email us as soon as possible so that we may promptly correct any information.
Links to other websites
Our website may contain links to other websites of interest. However, once you have used these links to leave our site, please bear in mind that we do not have any control over that other website. Therefore, we cannot be responsible for the protection and privacy of any information that you may provide while visiting such sites. These outside sites are not governed by this privacy statement. You should exercise caution and review the privacy statement applicable to the website(s) in question.
Our site provides users the opportunity to opt-out of receiving communications from the Chiari & Syringomyelia Foundation. To request that you not receive particular communications, please send an e-mail to info@CSFinfo.org, call 718-570-0057, or mail your request to Chiari & Syringomyelia Foundation, 69-39 Yellowstone Blvd. #216, Forest Hills, NY 11375. Please allow up to five business days for your request to be fulfilled. You may also feel free to contact us via these aforementioned channels for any other reason.