6th Annual Benefit and 5th Annual Motorcycle Ride to Help Find a Cure for Chiari Malformation and Syringomyelia
Date: August 27, 2011
Location: Toccolana Club, 1412 E. Dominick Street, Rome, NY
Motorcycle Ride and Fundraiser
Sign up is between 8:30am and 9:45am
Ride at 10am and fundraiser is from 12 noon to 5pm
Snacks, free beer, food, music, quilt raffle, baskets, silent auction, magician, Chiari information center, children's play area.
Tickets: $15 each
Honoring Brianna Tebo
About Brianna: Briana is 11 years old and in the 5th grade. At this time, her main symptom from the Chiari malformation is scoliosis. She does have a heart condition and doctors are now doing tests for other neurological and nerve disorders. Brianna's mom, aunt, and grandfather also have Chiari malformation. Her grandfather lives in another state and has had many difficulties from this disease throughout the years. Her mom has not had surgery and suffers daily from pressure headaches, dizziness, and many other symptoms that challenge the daily activities of people living with Chiari malformation.