Last September, CSF stormed Capitol Hill with you to make a difference for people living with Chiari malformation, syringomyelia and related disorders… and it seems like Congress is finally ready to listen. In February, they voted to increase the NIH budget by $31.3 billion to support more biomedical research. The House of Representatives also just passed the 21st Century Cures bill, which promises to fund more innovative medical research, especially for debilitating neurological disorders that are often overlooked for funding.
Join us for the 2015 unite@thehill! Let's keep the forward momentum in Congress moving and help make advocacy happen! This year, we want everyone to bring their voice to Washington, D.C. and help make a difference!
Sunday and Monday, September 20-21, 2015
Sunday: There will be an evening reception at the Hilton Garden Inn - Arlington / Courthouse in the Gavel Room. The reception will feature a special meeting with Dr. Fraser Henderson for unite@thehill attendees!
Topic: Neurological Conditions That Can Complicate the Outcome of Chiari Surgery
*This will be a special, informal lecture and audience participation is welcome!*
Monday: We will storm the Hill once again to personally meet with your Washington representatives. Contact Kaitlyn Esposito or Cathy Poznik to schedule an appointment with your Congressional rep’s staff!
Click HERE to register for the 2015 unite@thehill!!
Registration Fee: Adults - $25, Children under 12 - $15
Need accommodations? Call the Hilton Garden Inn – Arlington Courthouse at 1-877-782-9444 and use the group name: Chiari & Syringomyelia Foundation.
Can’t attend the unite@thehill in person, but still want to get involved in advocacy? Write an email or letter! Watch the unite@thehill video series and take a peek at this sample letter for inspiration and guidance, then find your local representative and put that pen to paper (or fingers to keyboard)! Briefly explain your story and why supporting research is important to you.
In order to prepare you to become an advocate for medical research and improved patient outcomes, watch the unite@thehill video series to get a better idea about how you would like to advocate for the children and adults living with these disorders!