For the past two years, CSF has stormed Capitol Hill with you to make a difference for people living with Chiari malformation, syringomyelia and related disorders… and it seems like Congress is finally ready to listen: in February 2015, Congress voted to increase the NIH budget by $31.3 billion to support more biomedical research. In 2016, the House of Representatives also passed the 21st Century Cures Act, which promises to fund more innovative medical research, especially for debilitating neurological disorders which are often overlooked for funding.
It is currently waiting to be voted on by the Senate-- and that's where YOU come in... let's keep the forward momentum in Congress moving. Join us for the 2016 unite@thehill and help advocate to ensure this and other important legislation gets to the desk of the President of the United States!
Registration Fee: $25 for Adults | $15 for children under 12 y/o
*Meetings with Congressional Representatives may include a signfiicant amount of walking, depending on the number of meetings/appointments you would like to have and whether or not those Reps are members of the House or the Senate.We recognize that patients with these disorders will want to advocate for themselves, and that those patients may have difficulty walking. Some patients may require assistance. We will be doing our best to ensure your advocacy trip is successful, so please let us know if you have any mobility issues!
Click here to register for the 2016 unite@thehill.
Need hotel accommodations? We have secured a room block at the Hilton Garden Inn Arlington/Courthouse (1333 N Courthouse Rd, Arlington, VA). You can make hotel room reservations here. Say "CSF" for the reduced room rates!
Can’t attend the unite@thehill in person, but still want to get involved in advocacy? Write an email or letter! Watch the unite@thehill video series for guidance, then find your local representative by zip code or state (House and Senate) and put that pen to paper (or fingers to keyboard)! Briefly explain your story and why supporting biomedical research is important to you.