For the past two years, CSF has stormed Capitol Hill with you to make a difference for people living with Chiari malformation, syringomyelia and related disorders… and it seems like Congress is finally ready to listen.
In February 2015, Congress voted to increase the NIH budget by $31.3 billion to support more biomedical research.
The House of Representatives also passed the 21st Century Cures bill, which promises to fund more innovative medical research, especially for debilitating neurological disorders that are often overlooked for funding.
Let's keep the forward momentum in Congress moving... join us for the 2016 unite@thehill!
Sunday-Monday, September 11-12, 2016
Sunday: There will be an evening reception at the Hilton Garden Inn - Arlington/Courthouse.
Monday: We will storm the Hill once again to personally meet with your Washington representatives. Contact Kaitlyn Esposito or Cathy Poznik to schedule an appointment with your Congressional rep’s staff!
Click here to register for the 2016 unite@thehill!!
Registration Fee: Adults - $25, Children under 12 - $15
Need accommodations? We have secured a room block at the Hilton Garden Inn Arlington/Courthouse Plaza. Click here to make reservations.
Can’t attend the unite@thehill in person, but still want to get involved in advocacy? Write an email or letter! Watch the unite@thehill video series and take a peek at this sample letter for inspiration and guidance, then find your local representative and put that pen to paper (or fingers to keyboard)! Briefly explain your story and why supporting research is important to you.
In order to prepare you to become an advocate for medical research and improved patient outcomes, watch the unite@thehill video series to get a better idea about how you would like to advocate for the children and adults living with these disorders!