For the past two years, CSF has stormed Capitol Hill with you to make a difference for people living with Chiari malformation, syringomyelia and related disorders… and it seems like Congress is finally ready to listen: in February 2015, Congress voted to increase the NIH budget by $31.3 billion to support more biomedical research. In 2016, the House of Representatives also passed the 21st Century Cures Act, which promises to fund more innovative medical research, especially for debilitating neurological disorders which are often overlooked for funding.
It is currently waiting to be voted on by the Senate-- and that's where YOU come in... let's keep the forward momentum in Congress moving. Join us for the 2016 unite@thehill and help advocate to ensure this and other important legislation gets to the desk of the President of the United States!
Sunday and Monday, September 11-12, 2016
Sunday: There will be an evening reception at the Hilton Garden Inn - Arlington/Courthouse featuring an educational lecture by Dr. Fraser Henderson.
Monday: We will storm the Hill once again to personally meet with your Washington representatives. Contact Kaitlyn Esposito or Cathy Poznik to schedule an appointment with your Congressional rep’s staff.
Attending Advocate Information
Registration Fee: $25 for Adults | $15 for children under 12 y/o
Need accommodations? We have secured a room block at the Hilton Garden Inn Arlington/Courthouse Plaza. You can make hotel room reservations here.
Can’t attend the unite@thehill in person, but still want to get involved in advocacy? Write an email or letter! Watch the unite@thehill video series for guidance, then find your local representative and put that pen to paper (or fingers to keyboard)! Briefly explain your story and why supporting research is important to you.