CSF wants to help you become an advocate for change and to help those who are constantly struggling with the effects of Chiari malformation, syringomyelia, Ehlers-Danlos Syndrome, hydrocephalus, dysautonomia, intracranial hypertension, and many other painful disorders.
On Sunday and Monday, September 20-21, 2015, CSF will host the second unite@thehill! Acting as the final unite@night walk, we will walk with you to Capitol Hill to personally meet with Washington representatives in Congress!
If you are attending the unite@thehill in Washington, DC, a CSF staff member will help you schedule an appointment to meet with your representative's staff! Contact Kaitlyn Esposito or Cathy Poznik to get started! We have secured a hotel room rate of $129 per night. Details regarding registering for the 2015 unite@thehill and hotel room reservations will be available soon!
First thing's first: How would you be best suited to advocate? Would you like to join us this September and meet your representative in person? Are e-mails more your style? Maybe you're more old-school and you'd rather write a letter?
In order to prepare you to become an advocate for medical research and improved patient outcomes, watch the unite@thehill video series to get a better idea about how you would like to advocate for the children and adults living with these disorders!