**ADVOCATING FOR YOUR STUDENT WITH CM, SM OR RELATED DISORDERS**
Does your child with Chiari malformation, syringomyelia and related disorders need a little extra help at school? Visit the new Chiari@School page to learn more about how young learners can be affected by these conditions. Check back frequently and send us some comments about things you want to see added to this page!
CSF collected patients letters and marched them directly to the offices of the Congressional Representatives on Capitol Hill last September at the 2016 unite@thehill!
Want to get involved next year and ensure that public policy reflects the interests of patients suffering from Chiari malformation, syringomyelia and related disorders? Find out what it takes to become an advocate.
PATIENT AND PARENT RESOURCES
Our Helpful Links and Parent Connection sections provide some great resources for patients and parents looking for information on various topics ranging from disability to medical transportation.