CSF will be collecting your written letters and marching them to Capitol Hill on September 12th for the 2016 unite@thehill! Help us bring your voice to Congress and ensure that national policies reflect the interests of patients suffering from Chiari malformation, syringomyelia and related disorders. Find out what it takes to become an advocate and learn more about the 2016 unite@thehill.
PATIENT AND PARENT RESOURCES
Our Helpful Links and Parent Connection sections provide some great resources for patients and parents looking for information on various topics ranging from disability to medical transportation.