The Chiari & Syringomyelia Foundation, Inc., a 501(c)(3) organization built on leadership, vision and commitment to find a cure for Chiari malformation (CM), syringomyelia (SM) and related disorders, was founded in October 2007.
Many recognized world-class physicians, scientists and professionals agreed to collaborate and form a superior Scientific Education & Advisory Board. The trusted and dedicated members of our Board of Directors and Board of Trustees include community and business leaders, educators, legal experts, families, and patients, who have been advocates in the CM/SM community for years. They have the skills and passion to create, fund, and direct programs and research that will change the lives of the over one million families affected by CM, SM, and related disorders in the United States alone.
CSF is currently the only organization serving patients with Chiari, syringomyelia and related disorders to have all three of the following distinctions: BBB Wise Giving Alliance Seal, Guidestar Gold Seal, and the Health On the Net Code. Check us out in the November 2014 issue of USA Today among the other nonprofits deemed as both effective in their missions, and responsible with their donors' dollars: full list.