Thanks to your support, CSF qualified as a Top-Rated Nonprofit for 2013 on GreatNonprofits.org! Of the eligible organizations, only 10% were able to claim this distinction and honor and it would not have been possible for CSF without your kind words and support!
Thank you for believing in us and our mission to be rid of these disorders for good!
2013 CSF Craniocervical Instability Colloquium
CSF sponsored a colloquium on October 19, 2013 meant to bring together the thought leaders in the fields of craniocervical instability and similar disorders of hypermobility. The experts presented their research and personal clinical findings. A consensus on diagnosis and treatment for these disorders was drawn and it is hoped that this will result in the medical community's improved knowledge of these disorders in order to improve patient outcomes.
The presentations are available to view on our website here.
A special book will be published for purchase and personal ownership that will contain each lecture in text format! Details coming soon.
CSF FUNDED RESEARCH
Upon scientific review by experts from the CSF Scientific Education & Advisory Board, CSF was pleased to fund the following 2012-2013 grants.
CSF also funded a Chiari Fellowship at the Duke Center for Human Genetics.
At CSF one of the things we often hear is that medical professionals simply do not know what Chiari is. CSF wants to help change this. We have put together an educational program called Consider Chiari. The objective of this campaign is to spark awareness, putting Chiari on the radar of medical professionals. We want people to Consider Chiari.
This campaign was successfully used at the Grand Rounds at Chicago’s Advocate Lutheran General Hospital last year and, more recently, we took the campaign to the North Carolina Chapter of the National Association of Pediatric Nurse Practitioners (NAPNAP). The Mission of the NAPNAP is: Promoting optimal health for children through leadership, practice, advocacy, education and research. Read more.
The 3rd annual Bobby Jones Classic for CSF will take place on May 18-19, 2014 at East Lake Golf Club in Atlanta, Georgia. Limited to 100 golfers, the event's activities will include a cocktail reception on the evening prior to the tournament, a full day of golf at East Lake, and an Alexa Stirling putting challenge, followed by an award dinner reception.
The Pot O' Gold Night at the Charity Ball will take place on Saturday, March 15, 2014 at the Hilton Garden Inn in Staten Island, New York. A fabulous evening of cocktails, dinner, silent auction, gaming, and great prizes.
For sponsorship information or to purchase tickets online, click here.
NIGHT OF LIGHT CHILDREN'S GALA
Guests gathered on November 9, 2013 at the James Burden Mansion in New York City for this exclusive, white-tie event.
Gala Honorees: Mr. and Mrs. Michael and Denise Mikula, Professor and Mrs. Rodney and Barbara Grahame, Lord and Lady Mark and Trish Malloch-Brown.
Keynote Speaker: Mr. Duncan Niederauer, Chief Executive Officer and Director, NYSE Euronext.
Thank you to our Dinner Dance Sponsors: The Hutnik Family, KeyBank, Forest City Enterprises, Stratford Capital Group, Barnside Capital, Porter Wright Morris & Arthur, Wallstreet Recycling, AWE, Solon Italian Club, and the Cleveland Clinic’s Chiari Clinical and Research Group.