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2014 csf unite@night
We can't wait to see you this June as we unite together and make a difference for those with Chiari malformation, syringomyelia and all related disorders. Together we can inspire hope for the over one million families who are affected by these disorders in the United States, alone.
Get more information about the 2014 unite@night group walks, Solo Walks, recognitionprizes and more by visiting the unite@night page here.
2013 CSF Craniocervical Instability Colloquium
CSF sponsored a colloquium on October 19, 2013 meant to bring together the thought leaders in the fields of craniocervical instability and similar disorders of hypermobility. The experts presented their research and personal clinical findings. The presentations are available to view on our website here.
CSF FUNDED RESEARCH
Upon scientific review by experts from the CSF Scientific Education & Advisory Board, CSF was pleased to fund the following 2012-2013 grants.
CSF also funded a Chiari Fellowship at the Duke Center for Human Genetics.
At CSF one of the things we often hear is that medical professionals simply do not know what Chiari is. CSF wants to help change this. We have put together an educational program called Consider Chiari. The objective of this campaign is to spark awareness, putting Chiari on the radar of medical professionals. We want people to Consider Chiari.
This campaign was successfully used at the Grand Rounds at Chicago’s Advocate Lutheran General Hospital last year and, more recently, we took the campaign to the North Carolina Chapter of the National Association of Pediatric Nurse Practitioners (NAPNAP). The Mission of the NAPNAP is: Promoting optimal health for children through leadership, practice, advocacy, education and research. Read more.
2014 events 3rd annual bobby jones classic for csf
The 3rd annual Bobby Jones Classic for CSF will take place on May 18-19, 2014 at East Lake Golf Club in Atlanta, Georgia. Limited to 100 golfers, the event's activities will include a cocktail reception on the evening prior to the tournament, a full day of golf at East Lake, and an Alexa Stirling putting challenge, followed by an award dinner reception.
The Pot O' Gold Night at the Charity Ball will take place on Saturday, March 15, 2014 at the Hilton Garden Inn in Staten Island, New York. A fabulous evening of cocktails, dinner, silent auction, gaming, and great prizes.
For sponsorship information or to purchase tickets online, click here.
2013 Events Night of Light Children's Gala
Guests gathered on November 9, 2013 at the James Burden Mansion in New York City for this exclusive, white-tie event.
Gala Honorees: Mr. and Mrs. Michael and Denise Mikula, Professor and Mrs. Rodney and Barbara Grahame, Lord and Lady Mark and Trish Malloch-Brown.
Keynote Speaker: Mr. Duncan Niederauer, Chief Executive Officer and Director, NYSE Euronext.
Thank you to our 2013 Dinner Dance Sponsors: The Hutnik Family, KeyBank, Forest City Enterprises, Stratford Capital Group, Barnside Capital, Porter Wright Morris & Arthur, Wallstreet Recycling, AWE, Solon Italian Club, and the Cleveland Clinic’s Chiari Clinical and Research Group.