**artistry and golf give back in honor of bobby jones**
Robert Tyre "Bobby" Jones Jr. was an American amateur golfer and lawyer by profession, who helped design the Augusta National Golf Club and co-founded the Masters Tournament. He was the most successful amateur golfer ever to compete on a national and international level. He was also diagnosed with syringomyelia.
CSF has worked closely with the Jones family over several years to educate physicians, allied scientists and the lay community about Chiari malformation, syringomyelia and related disorders. The Bobby Jones Classic for CSF is an annual golf tournament held at Jones' home course of East Lake that serves as a tribute to the legend and the man. This year, we are happy to announce our partnership with McTier Art to capture the beauty that is Jones' swing and the magic moments in his life with oils. These paintings, currently being crafted by master artists, will inspire generations through artistic medium and help raise funds for ongoing scientific research projects through the sale of a limited number of reprints. To learn more about these paintings, made available only once in a lifetime, contact us or McTier Art. To learn more about the artists, visit their site.
New physician lecture video
Dr. Fraser Henderson and Dr. Claudiu Austin discussed PANDAS, paraneoplastic limbic encephalitis and other related autoimmune disorders at the last Greater Metropolitan Washington Area Chapter meeting. Watch their one-on-one discussion with patients here.
thank you: christopher & dana Reeve Foundation
Thank you to Christopher & Dana Reeve Foundation, which has provided a grant to support CSF's ongoing Physician Lecture Series and Consider Chiari campaign! You can always view lectures from past meetings on our website.
international hydrodynamics research symposium
We are once again very proud to sponsor the 3rd International CSF Hydrodynamics Symposium, taking place in Amiens, France on July 9th and 10th of this year. Special thanks to the Monkton Institute for the generous grant allowing us to sponsor this critically important meeting that seeks to help patients struggling with Chiari malformation & syringomyelia. Learn more about past symposia here.
NBC sports, tour championship help spark awareness
NBC Sports and the TOUR Championship by Coca-Cola helped bring about more awareness for Chiari malformation, syringomyelia and related disorders on Saturday, September 13, 2014 when Emmy-award winning sportscaster Jimmy Roberts interviewed CSF Chairman Paul Farrell (pictured left, with Dorothy Poppe, CSF Executive Director), and Bobby Jones historian, Dr. Linton Hopkins. The pair discussed syringomyelia, which brought Bobby Jones' legendary golf career to a swift halt. The spot highlighted the fact that syringomyelia, Chiari and their related disorders affect over a million people in the US, alone; more than ALS (Lou Gehrig's disease). But while ALS had its "ice bucket challenge," similar awareness for Chiari and syringomyelia has yet to be sparked. Roberts, NBC Sports and the TOUR Championship hope that this interview will help raise the awareness and funds necessary to get rid of these disorders, for good. Thank you to Jimmy Roberts, NBC Sports, the TOUR Championship and East Lake Golf Club for your support! *Press Release
CSF FUNDED RESEARCH
*We are undertaking the momentus task of putting together the first EVER international patient database that will help to improve research for people with Chiari malformation, syringomyelia and related disorders. Learn more here.
*CSF funded its most recent research colloquium in Boston, MA to discuss co-morbidities that complicate Chiari malformation surgery in October 2014. Watch the lectures here.
*Upon scientific review by experts from the CSF Scientific Education & Advisory Board, CSF was pleased to fund the following 2012-2013 grants:
The eighth annual CSF Charity Ball will be held on Saturday, March 14, 2015 at the Hilton Garden Inn -- Staten Island, NY. The evening promises to include fabulous cocktails, a delicious dinner, silent auction, and of course, lots and lots of fun gaming! For more information and to purchase tickets, click here.
To see all the fun that was had at the 2014 Charity Ball, visit our Facebook page and view our 2014 Charity Ball photo album! You may also click here for a recap of the evening.
4th annual bobby jones classic for csf
The fourth annual Bobby Jones Classic for CSF will be held on May 17-18, 2015 at world-renowned East Lake Golf Club in Atlanta, Georgia. This exquisite event will include a cocktail reception prior to the tournament, exclusive Bobby Jones tours, an exciting Alexa Stirling putting challenge, a full day of golf at East Lake, all culminating with an awards dinner reception.
Unite with us this June to help over one million families affected by Chiari, syringomyelia and related disorders solve their puzzles... BE A HERO.
4th annual dinner dance for a cure
The fourth annual Dinner Dance for a Cure will take place on Saturday, October 24, 2015 from 6pm to 11:00pm at the Hilton Garden Inn in Twinsburg, OH. The evening will include cocktails, dinner, dancing, silent auction and raffle.
On Friday, September 5, 2014, the first CSF Cocktails & Couture for a Cure took place at the Chicago Yacht Club from 6-10pm. The evening featured gourmet food, fierce fashion and a chic auction... all for an amazing cause!
You can still download a formal invitation directly from our website here. You are also still able to make a donation to this event if you so choose online or via check. Contact Andrea Grosz for more information on how to do so. Until then... we'll see you next year!
Special thank you to our 2014 sponsors: Excel Displays & Container, the Mikula family, Stryker, John Ruge, MD and Advocate Lutheran General Hospital
Some experts estimate that it can take a patient an average of six years to recieve a proper diagnosis of Chiari malformation!
Through no fault of their own, many medical professionals are only vaguely acquainted with Chiari and the methods by which it can be treated. CSF wants to help change this. We have put together an educational program called Consider Chiari. The objective of this campaign is to spark awareness, putting Chiari on the radar of more medical professionals and to increase the likelihood that patients' needs will be met. We want people to Consider Chiari.
Are you a medical professional interested in learning more about this Consider Chiari? Maybe you are interested in implementing this educational campaign at your place of work? Contact us for more information andlearn more about past Consider Chiari events.